Just sitting here very grateful tonight. Blessed that Kenzie has done well since her surgery. There is a sweet little family in Utah that we have watched over the last 16 months deal with a very mean aggressive brain tumor called a DIPG (Diffuse Intrinsic Pontine Glioma). Most children die within the first year and very few make it past 18 months. Her name is Sadie. She is adorable. She just passed away on the 25th. Her funeral was today. If you would like to read about her story you can go to her blog.
http://www.sadiehuish.blogspot.com/
Please pray for their family. One thing that really made me cry was she was to the point where she could not communicate. She has to blink thru the alphabete so they would know what she was saying. Her wish before passing away was to get her ears peirced. She also had LDS recording artist Hilary Weeks come to their house to sing her a song. Amazing little girl.
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