Well, in a final effort to avoid suing our insurance company, which could take a year or two, we (our new attorney, really) sent off one final, strongly-worded demand letter this past Friday demanding that Golden Rule pay the past denied claims for the period of time Makenzie was participating in the clinical trial and continue to provide Everolimus (the medication she needs) for her in the future. We gave them until the 23rd of May to agree to pay before we file suit. The best result in this situation is for the insurance company to simply reverse their position and agree to pay. That way, Makenzie gets her medicine. Otherwise, we have to find a way to pay for the medication for a year, maybe more, while we sue the insurance company. To anyone who reads this... we ask for your prayers that the insurance company will do the right thing and just agree to pay.

Kenzie continues to be well. She, and all of us, are looking forward to school ending in just a couple of weeks.