Saturday, February 16, 2008

2 Years



February 15th marked the 2 year anniversary of Makenzie being diagnosed with a brain tumor. She and her family continue to be blessed and do well. She feels well and is able to do pretty much anything she wants. Her tumor still has not shrunk or grown. She has another MRI scheduled for February 26th. She has been on chemo for almost 2 years. But this could be the end of it if everything looks good. We will find out shortly after the 26th. If she stops chemo then she will just be monitored. We are not 100% sure what would happen if the tumor began to grow after stopping chemo. We will have to ask the doctor on our next visit. Please continue to pray for Makenzie in your prayers, that she will be blessed with health and miracles of healing.


Makenzie has been keeping busy and having fun. She and her family got to go to a Coyote's game in a suite thanks to Make-A-Wish. There were several other Make-A-Wish families there. They kept us fed with pizza, hotdogs, soda, and cookies. Keeping with the hockey theme, she was also adopted by a Phoenix Roadrunners hockey player, Brett Angel as part of the "Phoenix Roadrunners Face Off Against Cancer". Kenzie, Brett, and a bunch of other kids and their hockey players, have already had a party at the hospital where they ate pizza and played games. They also spent a day at the Phoenix Zoo. Carson got to go to the zoo also. He had fun teasing the Roadrunner's mascot and stomping on his feet. He named the mascot "Peckerwood". We don't know where he came up with that one. Still to come is 2 hockey games where the kids will get to eat ice cream with the players in the locker room after the game... and then a farewell party.


Makenzie also went to book signing a few days ago where she met up with her favorite author, Barbra Park, again. She got a signed copy of her latest book. She was excited to see Barbra again.


She is still doing well in school. She just got her progress report and she got all A's and B's. She was also January student of the month for her class so we are proud of her for that.

Saturday, January 05, 2008

New Year Update - Another MRI

It's been a while since we updated the blog. Makenzie and her family had a great Christmas. Makenzie and her brothers were spoiled by Santa and her family. Makenzie also sang "Stars Were Gleaming" on the Lake Pleasant Ward Christmas CD this year. She went to Turf Paradise, the Phoenix Zoo, and Build-A-Bear through the Rainbow Kids and Starlight Children's Foundation so she has been having fun. She is looking forward to a Camp Rainbow reunion and going to a Coyotes game in January.

She continues to feel well and is able to do what she wants to do. She had another MRI on December 18. She did this one without anesthesia also. The tumor is still the same. It has not grown or shrunk. Of course we would like to see it shrinking, but we are grateful it is not growing. She will continue her weekly chemo treatments for now. She has been on chemo since April of 2006 so she is quickly coming up on 2 years. She could possibly be on her current chemo until August... we will see.

We also moved over Christmas break. That made the break a little crazy. We sold our house and we are staying in Makenzie's Grandpa Bill and Grandma Alice's vacant house while waiting for our house in Cibola Vista to be finished sometime near the end of April.

Monday, October 08, 2007

Updates




Kenzie has been busy lately. She is doing well in school. She is finally figuring out that she doesn't like homework. She's lost a bunch of teeth, threatening to bankrupt the tooth fairy. A week ago she spoke at Casino Night at the Arizona Biltmore. This was a fundraiser for Phoenix Children's Hospital. They had a silent auction and a live auction to raise money. They also had casino tables set up. Guest were given chips and could play for more chips. They could then exchange the chips for raffle tickets for various prizes. Makenzie played some blackjack and did pretty well with some "help" from the dealer. She put all her tickets in the IPod jar and managed to win an 80GB Video IPod worth $400. This last Saturday Kenzie and family went to the annual family festival at McCormick Railroad Park in Scottsdale put on by Hope Kids (http://www.hopekids.org/). She and her brothers had fun, they ate pizza, rode the train, the carousel, played games, and got a Build-A-Bear. The weather was perfect.


The Angel Adventure Walk is coming up this next Saturday. Kenzie appeared on 12 news last Friday night to drum up awareness and support for the walk.
Makenzie has hit her goal of raising $2000 for the National Brain Tumor Foundation thanks to so many generous family members and friends. Of course, she is hoping to raise more.

Wednesday, August 29, 2007

The Latest MRI

Makenzie has been on chemo for about a year and a half now, since April of 2006. But she has been on her current chemo, Vinblastine, for one year now. Her first chemo, Vincristine and Carboplatin, made her very sick. So the doctor switched it to Vinblastine last August. Makenzie has done very well on Vinblastine. It has not made her sick, she is keeping her hair, and her counts are staying high. She got an MRI this last Tuesday. She did great, she did not get general anesthesia for this one. She stayed awake and did a great job of staying still. There has been no change in the tumor. It has not shrunk any.... but it also has not grown. There is a possibility that some of the tumor cells are dead, which would be good. But that is hard to tell from an MRI. She would need a PET scan to determine that. So, Dr. Etzl said the plan is to continue the current chemo for another 4-6 months and then do another MRI and maybe a PET scan. Then we will have to make further decisions. Often, kids only stay on Vinblastine for one year. But since Makenzie has done so well on this medication and it is at least controlling the tumor... Dr. Etzl decided to continue the treatment. Please, keep Makenzie in your prayers. She is doing well right now, feeling good, and able to do what she wants to do.

Makenzie is also team captain for Team Makenzie. Her team is walking in the Angel Adventure Walk on October 13 at Kiwana's Park in Tempe to benefit the National Brain Tumor Foundation. She has a sponsorship page...

http://www.firstgiving.com/makenziemoore

Any donation, no matter how small helps.

Saturday, August 11, 2007

Makenzie Goes to Camp Rainbow

Hi Everybody,
How are you doing? I went to a camp through the hospital called Camp Rainbow.You can ride the bus or your mom or dad can drop you off. The bus has a bathroom in it. I chose to ride the bus with my freind natalie. It is a week once a year. It is a blast. I did archery for the first time and shot about 60 or less balloons. I also rode a horse and was steering really well.I went canoeing, swimming, fishing, and arts and crafts. I made a crown that is cute. I made a necklace. I got a name tag. I learned some new songs. We got step counters and blankets with a stuffed animal. My cabin mates were nice. Their names were Jenna, jacquira, nikki, and Katie. We had a bed rock bash. I was really, really, really messy time. There was a game were we had to hold a helmet on are heads and pour some slime juice in a cup on the helmet and run to dump it in a bucket. I thought it was water but it wasn't and i spilled it on my clothse. People rubbed shaving cream on me. They also rubbed food on me. We had a pine cone ceremony. It is a time where you dedicate a pine cone to 1 or more people then toss it in the fire. We had a 50s sock hop dance.
Love Makenzie

We will add pictures when we get some!!!!

Makenzie also spoke a few weeks ago at the Carefree Resort to 400-500 people who were center directors for The Learning Care Group, a company that owns day care centers including Tutor Time (I think). She spoke about her Make-A-Wish day. Make-A-Wish and The Learning Care Group have a fund raising partnership to raise money for Make-A-Wish. Makenzie's job was to encourage the center directors of the day care centers to get involved in the fundraising by telling her story. She did a great job telling about her wish and got a standing ovation. The whole family even got put up overnight at the resort and got to swim in the pools and relax.

Monday, June 25, 2007

Updates

It's been a while since we updated the blog... but healthwise there is not much new to report. Makenzie continues to do well and is enjoying her summer. We are coming up on one year, in August, of the current chemo (vinblastine). At that point the doctors will evaluate where we go from there. It could be the end of chemo or she could go another year if she is tolerating the medicine well and it is effective. The last option would not surprise us because she has been doing well. She will likely get another MRI in July or August.

Kenzie and her family recently spent two weeks in Logan, Utah visiting her Grandma Alice, Grandpa Bill, Aunt Shelley, Uncle Scott, and cousins, Raleigh, Tyler and Sidney. Grandma and grandpa recently built a house and moved there. She went camping at Cub River, Idaho, riding quads up in the mountains, fishing, swimming at Downata Hot Springs, and played with her cousins a lot. She also got her first airplane ride. She flew home to Phoenix for the day for chemo treatment. She loved it. The whole family also wound up on antibiotics during vacation also, for strep throat.

Tuesday, April 10, 2007

Monday's MRI

Makenzie had her latest MRI this last Monday, April 9. Good news... there has still been no growth in the tumor. We would love to see it shrinking but no growth is still good news. So she will continue on her current chemotherapy once a week until mid-summer when she will have another MRI. Keep praying for her. Here is a message from Makenzie:

HI everybody, What's up? Isin't it just great to hear that there is no growth in the tumor? Is every body having a good year so far. Is anyone going on vacashion this year?If you are i would like to heear all about it. I have had a great year so far. I am thinking about going to a camp . It is called camp rainbow . It is once a year . The camp is for a week. I want to go but i don't because i will miss my mom. Ihave to go bye. p.s. Makenzie

Sunday, April 08, 2007

Busy Week



Makenzie has been busy lately. On April 3rd, Makenzie delivered 22o Easter bags filled with age appropriate goodies to Phoenix Children's Hospital to give to the kids who are patients there. The items that filled the bags were donated by students and families from Makenzie's school. Her classmates all helped fill and decorate the bags. 12 news covered the story. Click here to see the video...




Scroll down and find the video about the Easter giving spirit of a 2nd grader. It should be up for another few days or so.


On Thursday Makenzie and her family went to Disney: Monster's Inc on ice through the Starlight Children's foundation. They make sure kids who are dealing with serious health issues still get to have plenty on fun. All the kids had fun, even Brayden!


On Saturday, Makenzie spent the day at Lake Pleasant for C.A.S.T (Catch a Special Thrill) Day. The C.A.S.T organization provides fishing opportunites for kids with health issues where they get to fish with tournament bass fisherman out of their bass boats. She got a fishing pole and tackle box to keep. And she got to fish with a super nice couple, Leonard and Pam, out of their nearly new bass boat that I am sure cost more than mom's and dad's cars combined. They made sure her tackle box got stocked with pretty pink plastic worms. She even got to drive the boat. She did not catch a fish but she still had a load of fun. After fishing, all the kids got a barbecue lunch, trophies, and plaques for participating.


Tomorrow, Monday, Kenzie gets another MRI. We should know the results on Tuesday. Hopefully we have good news to report.

Monday, March 26, 2007

Makenzie's Baptism




Makenzie was baptized a member of The Church of Jesus Christ of Latter Day Saints last Saturday, March 24, 2007. She had a lot of family and friends there to make the day extra special. She wore a pretty new white dress and got a brand new set of nice scriptures. Her baptism was followed by a lunch at Makenzie's house. She is soooo excited.

Sunday, March 04, 2007

Happy Birthday Makenzie!



Makenzie turned 8 years old on Friday, March 2nd. She spend her 7th birthday in the hospital. This one was much better. She celebrated that night at Peter Piper Pizza with her family, Grandma and Grandpa Redmond, and Aunt Amber and Mike. She ate pizza and played games. She got a personal best 213 tickets and hit the 10,000 hole on Ski Ball several times. She had a fairy party on Saturday and invited a bunch of friends and Grandma Alice. They all played games, ate cupcakes and had a lot of fun. I think she wound up with $100 cash/gift cards to spend. Lucky! She is looking forward to getting baptized the end of March when her out-of-town family can be here.